Several people have inquired as to why I am not posting their comments.
I have posted and enjoyed every comment that I have received and I really appreciate all the support.
There is some kind of error with the comments that I am not sure how to fix at the present.
If you have sent a comment and thought I was not posting it on purpose, I am very sorry.
You can always e-mail me at incongruently@gmail.com and I will attach it every time. Promise.
David
Living with a malignant astrocytoma brain tumor and all of its exciting externalities.
Conflict
It was so loud and ear splitting
that birds flew up in a clamor from their comfortable perches in the trees,
rising in great squawking swarms that ominously blackened the sky like a huge
cloud passing in front of a swollen red sun. The entire neighborhood ran to
their windows to nervously peek from behind the safety of closed blinds or up
from the protection of dense shrubs, around thickets of trees and through the
cracks of wooden fences - a couple of the very boldest and bravest of them even
daringly walked, with obvious strained caution, towards the commotion and the
violence. Mothers tightly grasped their small children in their confused and
nervous panic - while fathers herded their families behind them in a protective
stance. The bloodcurdling screams
of death, pain and determination ran like chills of icy cold water through the
trembling bones of every man, woman and child within earshot – and earshot was
as wide as a mile. What they witnessed would dramatically change their lives
forever. What they witnessed was nothing short of war.
Regardless the natural passivity of
a personality, there will come a time when the only appropriate action is
conflict. The greatest stories of conquest and heroism arise from the
everyday-man’s instinctive animal ability to dig deep within his soul and the recesses
of his mind to tap the necessary fight-or-flight adrenaline in order to perform
super-human feats in the face of impossible opposition. I am not speaking of the crazy quests
of Captain Ahab or the practiced and perfected moves of professional fighters.
I am speaking of the rage that dwells within all of us. I am speaking of the
animalistic ferocity that resides within the center of our entire being and
once unleashed, will ravage and devour everything in its path. Seriously, I am
talking about a lot of anger here (I hope that you are appreciating the effort).
The air was a wavy and dizzily stop
motion home-made-film that only eyes pressurized by panic, anger and immense
pain can produce - filled with water, mud, blood and shouts of rage and pain. I
am screaming obscenities like mother-f-ing Samuel L. Jackson in every
mother-f-ing movie that he has ever been in. I am demon possessed and filled
with murder. I am as stealth and athletic as a turtle on its back (with a
broken leg), screaming like a mad woman giving birth. I violently and
spastically rolled towards my assailant, my attacker, my enemy. Fighting
through the grip of a massive seizure brought on from falling and smacking my
head on a rock; the pain of a busted and bleeding knee and a throbbing, freshly
smacked and already kind of soggy noggin. I stretched out my left arm (my only
working appendage) and gripped the very sharp stone that is now very slippery
from head blood.
Summoning every ounce of strength -
pulling as hard as possible against the restraints of nausea, fatigue,
dizziness and pain, I laid into my foe with every fiber of my being. I was
Thor's mighty hammer. I was the Hulk’s rage. I was an incredible dork that
watches too many cartoons with his kids and should probably focus more on
current events and environmental issues, but of course I find them both
depressing and discouraging and I already have a hard enough time with
depression issues without focusing on a crappy congress, bleak future and…
Sorry, where was I? I was an angry, fairly gimpy and kind of crying just a
little in a very manly way from the pain and frustration, badass ninja.
Several minutes later, after what
felt like a three-hour battle, the yard lay in complete waste. I stood in the
middle of carnage shaking from effort and hoarsely gasping from the cries of
battle. A wreckage of lawn, dirt, brick, blood and pottery pieces littered the
ground as if a bomb had exploded and left only me – just me standing and
bleeding over my fallen enemy. My provoker and object of my hate lay dead at my
feet.
Slowly, and with caution, the
neighbors approached to stare in wonder at the pitiful corpse that was broken,
battered, gashed, twisted and grotesquely strewn across the yard. Waiting for
the wild in my eyes to recede, my wife finally approached and touched my
shoulder. “Do we need to go?” she asked.
“Yes,” I said.
“Are you really hurt?” she asked.
“I am alright. I just wish the
neighbors would stop starring at me,” I answered.
“They have probably never seen
anyone kill and mutilate a garden hose because it tripped them before,” she
said.
“It didn’t just trip me! It was
like the fourth time! The damn thing was possessed and needed to die! Look at
my knee! It kept coiling up and…” etc, etc and on and on... I protested.
In the end, when all was said and
done, I had succeeded in destroying the demon hose and alienating every single
smiley-faced neighbor before I was eventually banned permanently from watering
the yard (and from every movable appliance with a cord or hose attached). But
sometimes late at night, when nobody is watching me, I still fight with hoses.
Just kidding – I don’t do that anymore.
I am
When I was diagnosed with brain
cancer, it was only a couple of days before chaos rushed forth from the
recesses of everywhere to fill areas that felt like only just a few moments
prior were occupied by extremely tangible and solid constructs of a reality that
I manufactured from the artificial desires of success posters, and catchy
clichés. Within the span of what felt like seconds, I was surrounded by an
onslaught of confusing and foreign medical babble that stripped away the
carefully crafted foundations that I had painstakingly built over a lifetime: I
was once again a 13-year-old child that had just realized that death and
mortality were a very real part of living and not a distant and unimaginable
future to be dealt with by an older, and therefore… somehow… a wiser and calmly
accepting man in possession of years of hard won knowledge and peace of mind; a
man that truly lived and is ready to pass on . It is now unfortunately apparent
though, that that was a romantic scenario that was never meant to be mine,
because I am still too young.
The fabric of society, false in
every sense of the definition, is easily understandable by even the simplest
among us and is therefore worn as foolish gaudy and grotesque layers of
protection against the cold harsh truth of our actuality. Adam Smith said,
“With the greater part of rich people, the chief enjoyment of riches consists
in the parade of riches, which in their eyes is never so complete as when they
appear to possess those decisive marks of opulence which nobody can possess but
themselves.” We are like greedy crows in search of shiny objects to occupy,
distract and create a sense of purpose which in actuality exists only in the
fact that we are incomplete and unprepared for the unknown reality that we must
all face. And now stripped of all material pride and possessions, and without
any braggart marks of opulence to provide for distracted focus of worth and
comfort, I have been left naked and wanting for external warmth, because I am
so cold.
Several times throughout the span
of even the most trivial, mundane and average of existences, there will be a
crumbling of the false material reality and moments of brief harrowing glimpses
into the vast unknown and unanswered questions of purpose and reason. Our innate
inability to comprehend the very nature of our own being and existence has
caused us all to recede into the constructs of disillusionments of purpose that
is based solely on weightless and unimportant goals of material for the sake of
material alone. The reality of disease has poked holes into my artificial
shelter of comfort and reminds me that I am but a small creature hiding from a
massive and scary unknown. And like the rest of the world, when all material
warmth has been shed, I stand in complete knowledge of nothing other than the
fact that I am very alone.
Only the souls of the naïve and
wide-eyed children have not yet learned to grasp the fear and mortality of the
flesh and the solitude of being and can truly and simply stand free on the
precarious periphery of the abyss and stare with wonderment and an honest
appreciation of the world around them. This innocent appreciation begins to
fade as we become old enough to ask questions that are impossible for us to
realize. I honestly feel that the tasted fruit of sin was not any kind of
knowledge in and of itself; it was instead the question of a knowledge that we
could never completely fathom, let alone answer. I am now falling into that
dark and unimaginable future that has eluded forever all of my repeated and
restated grasping questions and empty reasoning.
And here I am feeling still
too young, so cold and alone…and I am really afraid.
Childhood
When you get older, you sometimes
look back at your childhood with a mixture of both nostalgia and regret.
Lately, I have been thinking about my relationship with my sister and all of
its complications. Our relationship has come a long way since our childhood and
will probably continue to grow and become stronger as age, maturity and love
closes the gap that can sometimes form during childhood.
I am the second oldest of five
boys. My baby sister on the other hand, is the first oldest of one girl. I am
not being cruel or sexist, that is just the breakdown of family dynamics when
five boys precede the birth of the only girl: A mob of monkeys, a Faberge
child, a worried and protective mother, all lead to separate and distinct
childhoods. This is not to say that she was not loved: on the contrary she was
loved immensely, just loved in a different kind of way and could not be
included in any of our games or activities that required copious amounts of
face punching, taunting, face punching, ridicule, face punching and nut kicking
that I played with my brothers (it is a tradition of male siblings that
pre-dates the written word, culture or even language and must be applied to the
end of all games including ball, board, video, invented and yes, even Bible
trivia).
Despite the best efforts of my
parents our house resembled a tree house: We knocked out the window screens for
easier access in and out of our rooms, tore apart our bunk beds to build forts,
disassembled the shower doors to use the metal frames as ninja swords and built
clever weapons with nails, screws, wiffle-ball bats and sawed off broom handles
(great for nunchucks). By removing the wick from your mom’s giant decorative
candles, securing a thick rubber band to the sides of the candle with wall
tacks or wood staples and feeding a shish kabob skewer through the hole in the
middle, you can create one of the world’s best dart guns and can launch a
wooden dart at speeds and force that can penetrate through your brother’s jeans
and at least 2 inches into his thigh allowing you to hit him right in his
stupid face with your homemade smoke bomb while he is gasping from pain (smoke
bomb constructed from a baby’s snot-sucker filled with Ajax and a bungee cord
for quick retraction after poisonous face smacking).
You are probably wondering where my
sister was during all of our super cool, and mom approved by the way, games of
boyhood innocence and tolerance exploration/exploitation (So is my mom at this
point). Well, I will solve this mystery and at the same time successfully prove
that we were not complete monsters that would endanger our baby sister and risk
her becoming injured or even merely included in our too dangerous for girls
excuse for not wanting to play with girls in our games. We kept her safely
locked away in the closet or some drawer or something, I think. I don’t remember, but she was safe for
sure, I think… Oh, I should tell you that probably the most fun thing that we
did was our tennis ball gun that required just a couple of soda cans,
hairspray, a tennis ball and some matches… Forgot about my sister – I will call
her later today and ask her where it was that we safely kept her so that you
can stop worrying.
Back to the story about my
childhood and something.
My youth was sort of a medley of Stand
by Me, To Kill a Mocking Bird, and Lord
of the Flies. On any given day we could
usually be found running around and playing barefoot in the hills or orange
groves behind our house and surprisingly often our days ended with poking
something dead with a stick (honestly, I am not sure why there were so many
dead things around our house – thank God my sister was safe). In both the hills
and orange groves we had multiples of amazing forts built from what I can only
assume to be donated materials and tools that were purposefully left unguarded
at construction sites, the junkyard at Shafer’s Horse Ranch and my dad’s tool
boxes and truck (he was always so excited to buy new tools and it made us happy
to help – plus, it was totally worth the beatings ; ). By the time we were finished, we had
created the Ewok Village. It was the most amazing collection of tree forts ever
assembled, complete with ladders (both wooden and rope), pulleys, decks, swings
and precarious placed large boulders that were capable of crushing to death any
intruders. When I talk about it with my sister, it is obvious that she would
have loved it (I am always happy to let her vicariously enjoy the moments that
made my childhood amazing and magical).
This post is going on forever. It
feels like I am writing a book – I am not sure how to wrap it up. Do I keep
talking about childhood stories of me and my brothers – like when we hit golf
balls off our driveway with tennis rackets, or when my oldest brother tried to
pee through a knot hole in the fence and got his penis smacked by the neighbor
kid with a wiffleball bat? That literally ended in a puddle of laughs. Or maybe
I should just apologize to my sister for the years of neglect, abandonment and
indifference that she suffered at the hands of her older brothers. I am
sorry…For real. Even though it was really mom’s fault when you think about it.
Conscience cleared!
My Blog
When I started writing this blog, I
did so in secret. I have never been confident in my writing abilities and was
not sure that I even wanted anyone to know I was writing at all. Other than
business memos and the occasional erotic suggestion letter slipped into the
offering basket at church, I have never written anything outside of college.
Only two weeks after starting this blog (and really only 3 days after
announcing its existence), I have had over 1,000 views into my mental musings –
all of them coerced and guilted by family and friends of course (I know that
guilted is not a word by the way, but it should be). Now, like it or not, I am
exposed and feel like I am butt-naked on an extremely well lit and very cold
stage (I am way more impressive when it is warm AND you are drunk).
It is an odd and slightly stressful
thing to post my thoughts into a public forum for all to view, and worse,
consider. This blog is supposed to be some kind of therapeutic emancipation
from the permanence and struggles of brain cancer – and possibly some kind of
therapy for others with terminal illnesses as well (my guess is that I allow
others to think, “I might be sick, but at least I am not that jackass writing
this blog”). It has to be slightly amusing that in an attempt to mentally deal
with a stressful and permanent condition I am choosing a medium that is also
stressful and permanent (this blog is as visible and stylish as mouth herpes
and I am only hoping that it will not be as enduring or have that bad herpes
after taste either – you’re welcome for the image).
If you have been reading this blog,
then you are either my mom (hi mom) or my wife (I know you’re shy, so I won’t
say hi to you here in the open like this) and if this is your first time here,
I can tell you honestly that this is as good as it gets - sorry. The truth is
that I get really bored sometimes and I hate talking on the phone (actually, I
don’t mind the talking, it is the listening part that sucks) and I do not want
to start muttering to myself (any more than necessary, that is).
If you have not read this blog, it
is a fairly dull and snail paced account of how my life has slowly become a blend of
different Michael Keaton movies. After surgery and during radiation treatments I looked and
smelled just like Beetle Juice (we both looked like we smelled like pee). And now life resembles some
sort of combination of My life and
Mr. Mom (both movies are
depressing and discouraging, but Mr. Mom makes you want to die and My Life makes you want to live).
Either way, if I have to be living a Michael Keaton movie I’d rather be in Batman
or Johnny Dangerously.
It’s my blog though, so I should
probably just make something up or just word it better.
(Life
Reworded)
This week I used my super human
abilities to not only restrain a deranged and extremely angry middle-aged madman with a brain tumor from
beating and choking to death a small annoying child and his damn dog that chews
on everything (even though both child and dog really deserved it), I also
valiantly destroyed several evil and malicious inanimate objects that were
obviously trying to wound and/or kill me and my family (the evil toe stubbing
chair leg, Satan's evil scatterings of small and very sharp toys, the demon possessed vacuum cord that continuously wraps itself around a man’s bad leg in an attempt to kill him and that stupid sliding rug have all finally
met their match). Next I will figure out a way to destroy or at least seriously
injure that damn slippery shower – maybe I will just smack some divots into the
shower floor with a bat. Because I’m Batman… You know, because Michael Keaton was
Batman and the bat shower thing – it’s not funny if I have to explain it.
Brain Cancer: A guide, part 1
Okay, so you have been diagnosed
with brain cancer, now what? First off, let me be the one to say welcome to
your new life of confusion, self-doubting, regret, weird physical disabilities
and an unexpected and sizable quantity of humiliating examinations performed by
copious amounts of strangers involving highly inappropriate and uncomfortable
levels of fondling that leave you feeling dirty, exposed and simultaneously
mentally exhausted from answering a constant barrage of questions that increase
in difficulty, designed to strip what was left of your dignity and stamina - if
you have read any of my other posts, you are aware that the questions mostly
involve poop (yours). It could be worse though. If you were in a third world
country, they would just beat you until the demon left your body (not sure if
they make you answer questions about poop during the beatings, though my
assumption is they can perform a visual examination after a few bashes of the
demon stick).
You should be aware that you will
get a ridiculous amount of support from a ton of sympathetic visitors the first
year and especially the first couple months after the diagnosis. Do not feel
guilty, swallow your pride and let them help you for the sake of your family –
they (your family) have to put up with your grumpy ass and deserve the help.
From experience, I can tell you that if you continuously turn people away, they
eventually stay away and it is your own damn fault. Also, there are certain
people that will not come to visit you because they are frightened by the
situation, hospitals in general or because they just don’t like you (I do not
know you, so I cannot make that call). But, I can tell you that the people that
do not visit usually make good babysitters (because they (A) feel bad for not
showing face or they (B) feel guilty for still not liking you – either way its
a win-win).
Now you might be feeling depressed
that you have brain cancer or you might actually feel just a little bit of
relief from the affirmation that you are not crazy and in fact are actually
sick (I was the later first and the first later, but that was before combining
the two and eventually dropping the later again and accepting the first). After
you have been diagnosed, everything should follow along in step with the way
Hollywood has portrayed that it would. If it does not go exactly as you have
been shown, then you are doing something wrong and you need to keep trying -
remember that the definition of insanity is trying the same thing over and over
and expecting different results (fortunately, your condition allows you to be
insane if you choose). Once you have perfected being terminally ill, you will
start to become enlightened and cannot be bothered by the mundane problems that
used to plague your work-a-day life. At this point you should be able to give
extremely sound advice that will change the way others live their lives (give
it a try, it is a lot easier to point and give directions then it is to
actually move the furniture it turns out). Also, this is probably the opportune
time to draw-up an unaccomplishable (another new word, you can use it) and
absurd bucket list that someone else that loves you can complete after you have
passed away. Tasks should include things like trekking the Gobi desert,
dogsledding to the North Pole or (my favorite) rafting in the
Appalachians. If you do not have a
missed dream to pass on and you love the people that love you, you can always
invent something cool like going to Machu Picchu or killing a Zebra (mmm, high
protein tasty cancer fighting exotic little people).
I am proud of you. That was a very
long paragraph and you made it all the way through. This next part is
important, so do not bail out yet. You should probably get something to drink
or watch Fox News and let your brain rest.
*Intermission*
Welcome back. Are you ready? NEVER
STAY OVERNIGHT AT THE HOSPITAL ALONE. You are not going to be a reliable
witness if something happens with your treatment or narcotics, because you will
most likely be on the narcotics in question (at this point you look and act
like a homeless junky and people talk to you the way you talk to homeless
junkies - and grand parents unfortunately). Most medical professionals are
amazing and caring people, but not all. It is not a complicated task to fake
the administration of a patient’s 3:00 AM dosage if there are no witnesses and
the patient is highly medicated, possibly addicted and mentally clouded from an
exhaustive surgery. So again, have a chaperone at all times – the best
chaperones, by the way, are sleep deprived wives and mothers (your siblings, on
the other hand, might remember the horrible things that you did to them when
you were young, and therefore, can never be trusted).
Since you have brain cancer, that
was probably a lot of information for you to absorb - brain cancer does not
really have that much to do with it, but I do not want you to feel stupid
because you have enough to worry about right now. Next week we will discuss the
excitements of contracting cancer, losing your meticulously designed future,
the art of re-planning, re-planning several more times again and then finally
giving up. See you then.
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